Spinal Muscular Atrophy (SMA) is a condition affecting the muscles involved in movement, which progressively weaken and become wasted (atrophy) over time. This includes the muscles involved in general movement, swallowing and breathing. It is caused by the loss of specialised nerve cells called “motor neurons”, which are controlled by the brain and allow for muscle movement.
Are you a carer for someone living with SMA?
Find out about best practice for SMA today. Learn about managing the needs of someone living with Spinal Muscular Atrophy, and be educated about new treatment options.
Our aim is to improve your understanding of Spinal Muscular Atrophy, so that someone living with the condition are understood and feel supported throughout their education, workforce, and daily living journey.
Want to connect with the SMA community?
In partnership with Roche Australia, SMA have developed an app which houses fact sheets, resources, videos, upcoming events, and gives you a chance to connect with other families world wide.
Download the app to your phone today to connect with our community.
Click on links below to download
We look forward to seeing you all there.
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After registering, you will receive a confirmation email containing information about joining the webinar.
If there is a topic that you would like to see covered, please send us a message through the contact us page and we will work on a webinar on that topic."> READ MORE
We are always looking for event sponsors for our major events and Corporate Sponsorship is a great way to get involved.
There are so many great benefits:
Join a powerful community of supporters who are helping tackle Spinal Muscular Atrophy at its very core.
Our community relies on our service to be informed about best practice for SMA today, as well as being a resource hub for specific SMA related material to raise awareness, educate, and support those wanting SMA information.
By donating, you can help support our SMA community and improve care for those living with SMA here in Australia. In doing so it ensures our community will have the best access to treatment, care and resources.
Your donation can be made in any of the following ways: