I am a parent of a child with SMA

Receiving the diagnosis of Spinal Muscular Atrophy is one of the most devastating moments a parent and family can experience. However, over time you will learn to establish a new sense of normal; you will adapt finding new ways of doing things. You may find you have many questions regarding SMA care options and how to manage e person’s at times, complex care.

You are not alone,
we are here to support you.

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