I am an adult living with SMA

As an adult living with SMA, the condition does not define you; it is merely a part of you. You may live independently, have a career or job, be studying, have a partner or a family of your own. We are here to help you with practical advice and best practice for SMA today. Many of you may not have seen an SMA specialist in many years and may be keen to obtain updates about recent developments in the SMA space today. We are here to support you and encourage you to take an active role in advocacy to ensure you gain access to the new treatment options when they become available.

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