SMA Webinar Series Number 6: Patient registries with Robyn Forbes
This event was held Tuesday 4 May 2021.
Robin Forbes hosted this presentation regarding the different patient registries, and the importance of registering for each one. Each registry is for a specific purpose. This presentation explains the Australian SMA Patient registry and the SMA Community Registry through SMA Australia.
Robin is an Associate Counsellor who has worked in the multidisciplinary neuromuscular clinic at the Royal Children’s Hospital in Melbourne since it began in 2008. This clinic oversees the care of more than 400 children with a variety of neuromuscular disorders.