Values and Perspectives Report of Adults with SMA
After 4 long months, countless hours of interviews and 2 surveys, our Values and Perspectives Report of Adults with SMA has been published and sent to the PBAC. It is the first report of its kind from our association that reviews the values and perspectives of 100+ adults within our Australian SMA community.
The report is now also available for download on our SMA Community App via the Apple Store or Google Play. If you would like a copy sent to you please email Julie at firstname.lastname@example.org and we can send you a printed copy of the report.
We would like to extend our heartfelt thanks to those of you who took time to participate in the interviews for this report.