SMA Webinar Series Number 9: What about me? Accessing treatments for adults

This event was held Thursday 1 October 2021.

We know the non-recommendation of both Spinraza (Nusinursen) and Evrysdi (Risdiplam) for the adult community left many feeling deflated.

We wanted to acknowledge this and also reassure the community that we wouldn’t stopped in our quest to work with the relevant stakeholders to ensure that future submissions to the Pharmaceutical Benefits Advisory Committee (PBAC) are the best representation of our adult community. We couldn’t have done this without YOU – thank you!

This event allowed responses to questions regarding not being able to access treatment that were submitted to SMA Australia ahead of the event.

A/Prof Lauren Sanders (St Vincent’s Hospital and University of Melbourne) answered any clinical questions, whilst Jo Watson (Deputy Chair and Consumer Rep for the PBAC) answered questions regarding the PBAC.