Getting Involved

Join us in making our voices heard.

As a rare disease advocate we know the importance of being passionate to create change for the SMA community not only in Australia, but globally.

We have created a list of ways you can become involved, and are encouraged and invited to participate in these outstanding events.

  1. Go to our website to discover more about SMA
  2. Socially share our Facebook and Instagram pages amongst your family and friends to help raise awareness within our wider community
  3. Use your voice to talk to your local Federal Member about Spinal Muscular Atrophy – tell your story
  4. Contact your local paper to tell your story and spread the word and raise awareness of SMA
  5. Attend our inaugural conference on the Gold Coast to hear from industry leaders about best practice for SMA today
  6. Attend an event for awareness month in Sydney or Melbourne for our 15th Anniversary celebrations
  7. Host your own event at work to help raise awareness (and funds) to continue the fight for SMA

  1. Use our social media hashtag #beSMAaware on your online posts to get our hashtag trending throughout August our awareness month
  2. Download the SMA Community App and get connected with other families affected by SMA
  3. Become a member of the association!

SMA Australia is a charity that is run for the benefit of its members, so join today!

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