Support Services

SMA Australia has a diverse role in the support of the SMA community

EDUCATION & ADVOCATING FOR

  • Newly diagnosed families
  • Extended family and friends
  • The general public
  • Healthcare professionals

We have a number of initiatives, programs and project in areas of support. These include

PROJECTS & PROGRAMS

  • Equipment Program
  • Cough Assist Program
  • Spinal Muscular Atrophy Association of AustraliaART Minds IPad Program
  • Research Project
  • Spinal Muscular Atrophy Association of Australia Patient Registry
  • Toy Library
  • State Resources

SUPPORT

  • One on one family support (in home and phone)
  • Up to date information in treatment for Spinal Muscular Atrophy Association of Australia
  • Referrals to counsellors & genetic counsellors
  • Standards of care for the treatment of Spinal Muscular Atrophy Association of Australia (TREAT NMD)

We have comprehensive information booklets and brochures for distribution to the Spinal Muscular Atrophy Association of Australia community. We are also more than happy help educate others in the community. Please don’t hesitate to contact the office on (03) 9545 3633 for further information.