Your Stories

Your stories

Every family’s journey with Spinal Muscular Atrophy Association of Australia is different and we would LOVE to hear from you about you and your family’s journey.

It is amazing how many people comment to us in the office about the peoples stories that we have up on the website. Many of these families are ‘role model’ families for newly diagnosed people. Others are that of true guts, courage and inspiration.

So we would love to hear from you!

To get your families story up on the website, just put pen to paper and send it in (or email it to us) along with a few family photos and we will add it to the website.

We are also planning to feature a family story occasionally in the newsletter, so we need your help in providing us with some material. So get pen to paper and we look forward to hearing about your Spinal Muscular Atrophy Association of Australia journey.

Please email a High resolution photo and your story to Jo Harlow at

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