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SMA Australia

SMA AUSTRALIA

Phone: (03) 9796 5744

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2018 04 anthony byrne

 The Hon Anthony Byrne member for Holt, tabled in Parliament the recent petition with 11,201 signatures! Listen to his speech about SMA and the petition below.

This morning I tabled in the Australian Parliament a petition from Spinal Muscular Atrophy Australia signed by 11,201 signatories. This petition requests the Australian Government to urgently fast track the availability of the life-saving drug Nusinersen (Spinraza) on to the PBS list for all patients with Spinal Muscular Atrophy by June 2018.

This life-saving drug will radically improve the quality of life for all patients with Spinal Muscular Atrophy (SMA), the childhood version of Motor Neurone Disease. Thanks to Julie Cini for leading efforts with this petition.

 

Click Here to listen to his speech