SMA Australia


Phone: (03) 9796 5744



Welcome to Spinal Muscular Atrophy Australia

Welcome and thank you for taking the time to visit our community here at SMA Australia. Spinal Muscular Atrophy (SMA) is a rare genetic muscle wasting disease that is the childhood version of motor neurone disease. The disease not only affects the muscles you see like your arms and legs, but all the muscles you can’t see, like your breathing, coughing and swallowing. SMA is a physical disability only and one’s intelligence is not affected. People go to main stream schools, hold regular jobs, live independently, have relationships and do many things that make their lives meaningful. In recent years there has been some exciting new developments with treatments, and we have been campaigning the Australian government to have access to this treatment here in Australia.

If you are newly diagnosed, or have just come across our page for the first time, we urge you to get involved, within the SMA community here in Australia. We would love to hear from you and are happy to support you on your journey.

We acknowledge that each person is different, and we endeavour to assist you and your requirements.


Special Announcement

Special Announcement

    Today we are extremely excited to announce that the PBAC gave …

Spinraza costs $100,000 a dose

Spinraza costs $100,000 a dose

  A Canberra mother, forced to watch her two-year-old son's rapid declin…

Parents take battle for lifesaving drug to parliament

Parents take battle for lifesaving drug …

Six-year-old Violet Rickard sometimes asks her mother if she’s going to die. …

Minister Tables Petition

Minister Tables Petition

 The Hon Anthony Byrne member for Holt, tabled in Parliament the recent p…