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SMA Australia

SMA AUSTRALIA

Phone: (03) 9796 5744

 

Welcome to Spinal Muscular Atrophy Australia

Welcome and thank you for taking the time to visit our community here at SMA Australia. Spinal Muscular Atrophy (SMA) is a rare genetic muscle wasting disease that is the childhood version of motor neurone disease. The disease not only affects the muscles you see like your arms and legs, but all the muscles you can’t see, like your breathing, coughing and swallowing. SMA is a physical disability only and one’s intelligence is not affected. People go to main stream schools, hold regular jobs, live independently, have relationships and do many things that make their lives meaningful. In recent years there has been some exciting new developments with treatments, and we have been campaigning the Australian government to have access to this treatment here in Australia.

If you are newly diagnosed, or have just come across our page for the first time, we urge you to get involved, within the SMA community here in Australia. We would love to hear from you and are happy to support you on your journey.

We acknowledge that each person is different, and we endeavour to assist you and your requirements.

 

Zacs Play Day Reading with Virginia Gay

Zacs Play Day Reading with Virginia Gay


  In 2018 SMA Australia worked alongside Biogen to produce this fantasti…

Life-changing drug still out of reach for adults with SMA

Life-changing drug still out of reach fo…


SPINRAZA, a game-changing drug that dramatically improves motor function for peo…

Help us lobby the Government

Help us lobby the Government


HI All, Thank you to all those of you so far that have taken the time to contact…

Only 30 days to go until SMA's 24-Hour Challenge!

Only 30 days to go until SMA's 24-Hour C…


SMA Australia will host the inaugural SMA 24-Hour Challenge on Thursday, Augus…