Julie became SMA Australia’s first CEO in late 2008. From 2005 until late 2008, Julie was the secretary/president of the association, managing SMA out of her own home. Julie founded the charity in 2005 and has since completely devoted herself to SMA Australia and SMA after her first of two daughters was diagnosed with the disease. Drawing from her training in disability and community services as well as her intimate experience with the effects of SMA, Julie wishes to provide an organisation for other affected families, offering support and answers any questions. As CEO, Julie is eager to expand SMA’s Australian presence with the help of her staff and devoted committee members.
Jo Harlow brings a wealth of administration knowledge to the association and aptly co-ordinates the SMA Australia office. Living with an illness herself she can empathise with others and is happy to help you with any queries you may have. Jo also brings previous experience in working for the not-for-profit sector. She is married to Brian and has three teenage boys – Liam Connor and Riley.