MISSION & VISION


SMA Logo HR-CMYK

CEO, Julie Cini founded the Spinal Muscular Atrophy Association of Australia, Inc., after losing both her children to Spinal Muscular Atrophy in 2005 and 2007.

Spinal Muscular Atrophy Australia Inc. is Australia’s leading support association, providing sufferers of Spinal Muscular Atrophy and their families with care options, resources and choices for themselves or their children, when newly diagnosed with the disease.

Spinal Muscular Atrophy Australia Inc.is a not-for-profit, registered, tax exempt charity with deductible gift recipient (DGR) status. The charity receives no Government funding and relies on sponsorship, events and generous donations so they can provide their support services to their SMA families. The charity is governed by a voluntary committee of management.

Statement of Purpose:

Our vision is for our community to be aware of Spinal Muscular Atrophy and supportive of those individuals and their families.

 

We aim to be the first point of contact as well as the specialists on support for the SMA community.

 

  • To encourage and promote awareness of Spinal Muscular Atrophy to the general public, community, professional services and support networks
  • To promote and provide ongoing support and information to families and sufferers of Spinal Muscular Atrophy
  • To maintain and promote a specialist pool of equipment not provided by hospitals. To assist families with Spinal Muscular Atrophy that helps with quality of life
  • To encourage families to become involved with the SMA community, to promote awareness and inclusiveness amongst families

 

Vision Statement

Our vision is for our community to be aware of SMA and supportive of those individuals and their families.

We aim to be the first point of contact as well as the specialists on support for the SMA community.

 

Mission Statement

To pro-actively care, support and provide for all SMA communities.

Care    for those directly and indirectly affected by SMA, i.e. sufferers and their families and medical carers.

Provide   to assist in providing services to those affected by SMA

Support   the mental, physical and emotional well-being of those affected by SMA.

 

Values

Tolerance – towards others without passing judgment.

Differences – within our community.

Accountability – for actions and decisions.

Understanding – to SMA families and each other.

Respectful – of personal decisions.

Honesty – to our families and within our business.

Communication – to become aware and share SMA related information.

Inclusiveness – to include all families affected by SMA