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SMA Australia

SMA AUSTRALIA

Phone: (03) 9796 5744

DONATE TO SMA HERE 

 

Welcome to Spinal Muscular Atrophy Australia

Welcome and thank you for taking the time to visit our community here at SMA Australia. Spinal Muscular Atrophy (SMA) is a rare genetic muscle wasting disease that is the childhood version of motor neurone disease. The disease not only affects the muscles you see like your arms and legs, but all the muscles you can’t see, like your breathing, coughing and swallowing. SMA is a physical disability only and one’s intelligence is not affected. People go to main stream schools, hold regular jobs, live independently, have relationships and do many things that make their lives meaningful. In recent years there has been some exciting new developments with treatments, and we have been campaigning the Australian government to have access to this treatment here in Australia.

If you are newly diagnosed, or have just come across our page for the first time, we urge you to get involved, within the SMA community here in Australia. We would love to hear from you and are happy to support you on your journey.

We acknowledge that each person is different, and we endeavour to assist you and your requirements.

 

Spinraza on the PBS

Spinraza on the PBS


  Another milestone for SMA Australia was reached recently, with the rec…

Commonwealth Bank grant from Mountain Gate branch

Commonwealth Bank grant from Mountain Ga…


  We are deeply appreciative for the grant that Commonwealth Bank Mounta…

Special Announcement

Special Announcement


    Today we are extremely excited to announce that the PBAC gave …

Parents take battle for lifesaving drug to parliament

Parents take battle for lifesaving drug …


Six-year-old Violet Rickard sometimes asks her mother if she’s going to die. …